Their Heads and My Heart
More updates on the helmets! Asher’s last day in his helmet should be February 25th! There is one more spot that needs to grow and they have shaved out all they can from his helmet so whatever progress is made by then is it. His head is looking great and I am so thankful we were approved by insurance to get him one. As for our little Vaughn, he had his second scan and there wasn’t any real growth. For the helmets to work he has to grow and we have had some struggles in the eating department with our little man. We are praying for a growth spurt for Vaughn so we can see some more big changes in his head. We are anticipating about 3 maybe 4 more months of wearing his helmet. I am currently working to get a swallow study ordered for Vaughn so we can rule out any medical/mechanical reason for the delay in eating table foods. Jerad and I also took Vaughn to have the first round of blood drawn for his genetic testing. Because he is so small and they needed such a large amount of blood, we have to go back later this month to finish the rest of the tests. We see the Rehab Doctor next week to find out what the next steps are regarding the torticollis in Vaughn’s neck. Unfortunately the torticollis isn’t getting better since he has been wearing the helmet. Some good news for Vaughn is after seeing the Eye Doctor yesterday she said, from what she can see, he is using his left eye and it is the same vision as the right eye! That is a relief as back in August he didn’t appear to be using his left eye as much as the right and the vision wasn’t as good. The Eye Doctor did say though that this most likely will change again and if Vaughn is still in his helmet and not keeping his glasses on, we will have to patch his good eye (the right eye) for a couple of hours a day to get his brain to keep using his left eye. Won’t that be a sight! Vaughn will be our little football pirate dude!
This blog is all about my boys…my heart behind it is so we can not only have something to look back on many years down the road but so our family and friends can know what is going on with Asher and Vaughn. That each of you can pray alongside us in this journey and that maybe someday another Mom or family will be in our shoes and be able to read this blog and know that the helmets aren’t too bad and all the therapies’ do pay off. Speaking of therapy our PT tells the boys “WOW” when they do a good job and Asher started to say WOW and it is just the cutest thing!
My heart though wants to share a little bit about how it feels today! I was driving to Brighton the other morning to pick up the twins from an overnight with my parents and the song “Wanted” came on by Hunter Hayes. I am not sure if you know this song but it is literally the words right out of my mouth to my Husband. I hear this song and it just brings the best memories of Jerad to my mind and it is my heart’s desire to make him feel wanted daily. I am proud to be his wife and humbled at how hard he works for this family. As I was singing my heart out, alone in the car a wave of emotion came over me. I thought…. This is also my love song to Jesus! I want to make Him feel wanted too! When you are in an intimate relationship with your Savior and King, you just want to wrap your arms around Him and tell Him that I would fall apart without Him. In a country where “In God We Trust” doesn’t really mean anything anymore, all I want to do is show how trust worthy He is and tell Him, He is WANTED. I just wanted to share this song today and leave you thinking about the words…..
PS. Izzy- if you are reading this, you are missed and wanted.
