These last 4 weeks have been busy for us! Vaughn is just about a month from his surgery and healing nicely. We have his new helmet that fits so much better and he has been wearing it full time for the past 2 weeks. His glasses have been a challenge as now that we don’t use the strap to keep them on but fit them into his helmet and he can now pull them off and use them as a teething device.
He looks pretty sophisticated with both his helmet and glasses on though! He only wears them once or twice a day when he is watching a little baby Einstein.
Asher had his first scan since wearing his helmet for 4 weeks and we have progress! I am so thankful that the helmet is working because that also means Asher is growing. The red outline (the inside circle) indicates his original scan and the blue line (the outside circle) is showing his progress. The top of the diagram below is the top of Asher's head and if you look at the picture of Asher, you can see the bottom portion of his head is becoming more round. Vaughn should have his first progress scan the beginning of January.
Asher has also graduated out of the eye care clinic! His eyes are looking healthy and he can now begin to get his eyes checked as he goes to school with the rest of the kids. He does have a slight astigmatism but the good news is the astigmatism is even in both eyes so there is no need for glasses at this time. Glasses are in his future but as for now, that is one less appointment for us.
I received a call earlier this week from our pediatrician’s nurse saying that there are no abnormalities in the genetic testing that was done when we drew Vaughn’s blood. What a relief as we do have an appointment with a genetic counselor next week. We are still going to meet with the counselor and the genetic doctor that specializes in the eyes to see if we can put a name to and or find any course of treatment for Vaughn’s eye.
So much has changed in a year….. Asher came home from the NICU on December 9th and this will be our first Christmas as a family at home. Vaughn later followed on December 30th and though this was the hardest and most challenging year for Jerad and I, I know we wouldn’t have changed it. It is our journey and Vaughn and Asher’s story.
